<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0"><channel><title><![CDATA[The Gideon Story]]></title><description><![CDATA[The Gideon Story]]></description><link>https://www.thegideonstory.org/blog</link><generator>RSS for Node</generator><lastBuildDate>Wed, 09 Sep 2026 17:27:40 GMT</lastBuildDate><atom:link href="https://www.thegideonstory.org/blog-feed.xml" rel="self" type="application/rss+xml"/><item><title><![CDATA[what the heck happened 2 weeks ago? ]]></title><description><![CDATA[What happened + what's coming for Gideon and our family! It has been a wild (if you will) past few weeks for our family. I feel like I've been stretched pretty far mentally, physically, spiritually, and emotionally over the past 3 years, but I think 2 weeks ago was one of the hardest. Maybe partly because we felt like we were "past" the hard stuff and thought we were done with these kinds of things. Or maybe because while we're just trucking along with the medical things and advocating and...]]></description><link>https://www.thegideonstory.org/post/what-the-heck-happened-2-weeks-ago</link><guid isPermaLink="false">6aa1640d65014d409c15de6e</guid><pubDate>Wed, 09 Sep 2026 14:54:26 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_74263f5af28f489bb909e04f252f344b~mv2.jpg/v1/fit/w_768,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[A very long, overdue update]]></title><description><![CDATA[First off, thanks for still hanging around, checking in on us, and praying for Gideon (and us). I know I left some cliff hangers and many of you know about our summer, but there has not been a formal update from us! I honestly took a step back from planning, scheduling, immersing myself in the medical things. I need a summer. I needed some normalcy and also, I was overwhelmed by a lot of things. The fact that we are still living medical complexities that make "normal" life seem even further...]]></description><link>https://www.thegideonstory.org/post/a-very-long-overdue-update</link><guid isPermaLink="false">6a7fa227204f6d08e07ebdc2</guid><pubDate>Fri, 14 Aug 2026 23:50:50 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_8225b5725ee8499090f868ae52ced710~mv2.jpg/v1/fit/w_768,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[cinco de mayo... cinco de surgery ]]></title><description><![CDATA[It's 4am as I'm writing this and we are already on our way to Knoxville for Gideon's eye surgery - and what a saga this alone has been. As many of you know, we were due for a bronchoscopy a few weeks ago to look at Gideon's airway and remove his trach. 3 days before that was supposed to happen, Gideon had a cold and we had to move it out a month. I haven't sat down long enough to write up that post so I'll include it here. Having a sick kid is never fun. Having a medically complex kid that...]]></description><link>https://www.thegideonstory.org/post/cinco-de-mayo-cinco-de-surgery</link><guid isPermaLink="false">69f9a96fe6cd293e4375fce9</guid><pubDate>Tue, 05 May 2026 09:03:28 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_113a7dd30a6640b49d203fa2d7e90e96~mv2.jpg/v1/fit/w_360,h_480,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[sleep study - CHECK. ]]></title><description><![CDATA[We were called with an opening for a sleep study for Gideon a month ago and received the results about 2 weeks ago. Everything looked great while he was sleeping. The experience however, was not Gideon's favorite As you can see, it wasn't just a few metrics being measured but EVERYTHING. Full EEG set up on his little head, leads on his body and a nose cannula. He hated every minute of it. They needed 6 hours of data and they seemed to get just enough. A little more about how that day went.  I...]]></description><link>https://www.thegideonstory.org/post/sleep-study-check</link><guid isPermaLink="false">69d683f84424ffa457c20acb</guid><pubDate>Wed, 08 Apr 2026 17:38:49 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_770299bb27c948d1a7a3eb503f86ddbb~mv2.jpg/v1/fit/w_768,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[spring awakening]]></title><description><![CDATA[First off - apologies for the long stretch between updates. It has been a very.. busy but buckled down past couple of months. We have so much to share about our Mighty Warrior! Brace yourselves for a long post - I probably should have broken this up into multiples. Stay until the end and we hope you are blessed today! First off - his surgery in November went GREAT! The timing was absolutely perfect. We went up on a Tuesday, had surgery that afternoon, and were discharged around lunch or so...]]></description><link>https://www.thegideonstory.org/post/spring-awakening</link><guid isPermaLink="false">69a30cee177696dbd353c413</guid><pubDate>Sun, 01 Mar 2026 17:00:19 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_cb097ccff6874995b42d180ce2992d89~mv2.jpeg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[Gideon's first plugged trach]]></title><description><![CDATA[In December, just a week before Christmas, Gideon got a plug in his trach. This was so terrifying for all of us. Everyone was home, enjoying our typical Friday night when all of a sudden Gideon became unresponsive. He glazed over, drool coming out of his mouth and shook just a little bit. We almost thought he was having a seizure (he was not and that has been ruled out numerous times). Daniel and I have both been so used to the acute desaturations we experienced his first several months home,...]]></description><link>https://www.thegideonstory.org/post/gideon-s-first-plugged-trach</link><guid isPermaLink="false">69a317bd177696dbd353d697</guid><pubDate>Sat, 28 Feb 2026 16:47:50 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_9924fed66a4e45889e7c1c91cdf602d7~mv2.jpeg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[a new season is upon us]]></title><description><![CDATA[I had started this update with some good news... and then by the end of the day the news had changed and it's even better now. We have been a little quiet because we're just trucking along with Gideon. He receives anywhere from 3-5 therapies a week, 2 of which are at a center every week (speech &#38; feeding). We were actually "graduated" to a once a month checkin until his speech develops more with our speech therapist. He has met all of his goals which is amazing! We've been able to have him...]]></description><link>https://www.thegideonstory.org/post/a-new-season-is-upon-us</link><guid isPermaLink="false">692109370acaec313277e7bb</guid><pubDate>Sat, 22 Nov 2025 01:27:06 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_972ef907ded945e88b5c728ec585f924~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[All the spunk]]></title><description><![CDATA[Here's a fun story about Giddy that happened last week in feeding therapy. Our therapist has to do stretches and exercises and then we do...]]></description><link>https://www.thegideonstory.org/post/all-the-spunk</link><guid isPermaLink="false">68cbfc52982f76ef4a0dc5a3</guid><pubDate>Fri, 19 Sep 2025 14:45:05 GMT</pubDate><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[An (overdue) update]]></title><description><![CDATA[Summer has flown by. In the best way ever. I feel like we really worked hard to make up for lost time from last year, despite the amount...]]></description><link>https://www.thegideonstory.org/post/an-overdue-update</link><guid isPermaLink="false">68cbe633345efb3a8837f503</guid><pubDate>Thu, 18 Sep 2025 12:05:38 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_d33f6404ba0b46bebd14eb3d0ba6c83b~mv2.jpeg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[cleft surgery 2.0]]></title><description><![CDATA[It is the eve of our next surgery for Gideon's cleft. February was his nose/lip reconstruction and tomorrow will be his palate. This will...]]></description><link>https://www.thegideonstory.org/post/cleft-surgery-2-0</link><guid isPermaLink="false">685c860e6092e10b7c57949c</guid><pubDate>Thu, 26 Jun 2025 00:55:08 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_8213b4006ba340bc8cdf4c589e2efd87~mv2.jpeg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[a glimpse into our day. ]]></title><description><![CDATA[As I sat here this morning trying to accomplish so many things I decided to snap a photo. The overwhelm comes on strong more times than...]]></description><link>https://www.thegideonstory.org/post/a-glimpse-into-our-day</link><guid isPermaLink="false">683ee4bc2a0c8d5ba94836d9</guid><pubDate>Tue, 03 Jun 2025 12:47:55 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_512f437714f349989dbedc84784496a3~mv2.jpeg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[success. ]]></title><description><![CDATA[It's been one week since our impromptu sleep study. This was a no frills sleep trial - nothing additional monitoring other than a pulse...]]></description><link>https://www.thegideonstory.org/post/success</link><guid isPermaLink="false">682f2b931130e3f931831c5e</guid><pubDate>Thu, 22 May 2025 14:15:38 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_956070fed011427cb14fd071e803227f~mv2.jpg/v1/fit/w_768,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[Backwards. ]]></title><description><![CDATA[This is the word God gave someone for Gideon. I had seen her several times at church but never really spoken to her. She came up to me a...]]></description><link>https://www.thegideonstory.org/post/backwards</link><guid isPermaLink="false">6825033a903800387b04ebbb</guid><pubDate>Wed, 14 May 2025 21:35:13 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_a70598c0f3864ab48cbc41583791fde2~mv2.jpg/v1/fit/w_768,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[healed. ]]></title><description><![CDATA[One of Gideon's diagnoses was multiple heart abnormalities. Those consisted of VSD, Double outlet right ventricle, possible atrial...]]></description><link>https://www.thegideonstory.org/post/healed</link><guid isPermaLink="false">68065df00b02377df23623a5</guid><pubDate>Mon, 21 Apr 2025 15:22:37 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_d43026a771a545b3b56658f56f55203f~mv2.jpg/v1/fit/w_768,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[Family of 5]]></title><description><![CDATA[This past Sunday, one of my literal dreams came true. We worshipped as a family of 5. We did Gideon's vent break in the morning and were...]]></description><link>https://www.thegideonstory.org/post/family-of-5</link><guid isPermaLink="false">67ee7549cbac1441ac35bed9</guid><pubDate>Sat, 05 Apr 2025 13:59:03 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_07fc59810c504ade93cd62a8f3c178e2~mv2.jpeg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[6 Week Post-Op]]></title><description><![CDATA[What a mix of - it's already been 6 weeks! And How has it only been 6 weeks? Gideon's little face is healing up nicely - the scar is...]]></description><link>https://www.thegideonstory.org/post/6-week-post-op</link><guid isPermaLink="false">67ee6f1e5f05671e9549a252</guid><pubDate>Thu, 03 Apr 2025 11:44:35 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_78fb8f2fa432429abf302c96f93f8bf7~mv2.jpg/v1/fit/w_768,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[Touching Grass ]]></title><description><![CDATA[Oh how I am so happy these days are upon us. Gideon is up to 2 hours of vent breaks a day. Yesterday we took full advantage of the warm...]]></description><link>https://www.thegideonstory.org/post/touching-grass</link><guid isPermaLink="false">67bddeac593af992b6e6a7e5</guid><pubDate>Tue, 25 Feb 2025 16:21:34 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_78ddb429147c4e478e14df63026ba291~mv2.jpg/v1/fit/w_768,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[Post-Op]]></title><description><![CDATA[It is so hard to believe we are already 8 days post surgery. Gideon has been handing everything so incredibly well. Our surgeon did such...]]></description><link>https://www.thegideonstory.org/post/post-op</link><guid isPermaLink="false">67af34be54865f30feb2f778</guid><pubDate>Fri, 14 Feb 2025 13:00:34 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_c9eb5e4c0f6a452880c5709857862d87~mv2.jpg/v1/fit/w_768,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[Cleft Surgery #1]]></title><description><![CDATA[What a whirlwind these past 2.5 days have been. Gideon's surgery was a success - which we had no doubts. What I did not expect was the...]]></description><link>https://www.thegideonstory.org/post/cleft-surgery-1</link><guid isPermaLink="false">67a6706973e84a6bd98f44cd</guid><pubDate>Fri, 07 Feb 2025 21:18:15 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_6d712931494d4d8ab6a5358c571dd8ad~mv2.jpeg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item><item><title><![CDATA[Travel Day]]></title><description><![CDATA[I am writing this to you as we are en route to where our surgery will be. Is traveling inconvenient? With all this extra gear, yes. But...]]></description><link>https://www.thegideonstory.org/post/travel-day</link><guid isPermaLink="false">67a271a15cfe37560eca69c7</guid><pubDate>Wed, 05 Feb 2025 22:49:32 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/dead17_e496464d61284ad58b742cf877edd6ec~mv2.jpg/v1/fit/w_768,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator>ashleydking89</dc:creator></item></channel></rss>